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Wednesday, July 25, 2012

I Had Leukemia

Carefully note the past tense. See you later cancer, you are not welcome back. Of course, we will never know if I’m completely cured, so that unknown will always hang over me. I also have a very long road to recovery, with many more potential complications and speed bumps. But for now, I cheated death. My donor saved me. The new bone marrow is working. And hopefully, with time, that new marrow will become my own, cancer’s threat will fade, and this nightmare that I’ve lived for the past six months will slip further into my memory.

My four-year-old son told me yesterday that he was proud of me. For what, I wondered. He didn’t really have an answer. He was just proud of me.

Maybe he instinctively knows that I have been through hell. Maybe he knows that I went to the brink of death and then clawed my way back, thinking of him and his sister and his dad the entire time. Maybe, on some level, he knows that I said “No thank you” to death’s invitation (only I wasn’t that polite, and there were definitely some curses involved). Maybe, somehow, he knows that I’m still struggling, that it still hurts, and that I still need lots of hugs and kisses. Four-year-olds can be very wise.

I am now in the fragile, treacherous ground of post-transplant recovery. Every change in health, every rash, fever, cough, or sniffle must be documented and investigated. I am so tired that, like a newborn, I usually need a nap about two hours after I wake up. When I am awake, I am not always coherent. I walk like a little old lady (really, I do). But every day seems just a little bit better than the last, and so I cling to hope.

I had leukemia once. It's a horrible story that I'm not going to tell very often. But next year on June 27th I’m having a (re)birthday party. Mark it down. Save the date. 

It’s going to be a big one.