Talking to children about illness, after all, is not something
in which I am an expert. In fact, when the social worker gave me a book titled
“When a Parent is Sick,” I instantly recoiled. We were not that family. And
yet, devastatingly, we were.
The book was a knife to my stomach. It had ways to explain
death and dying to children of every age. I nearly tossed it across the room. I
was not going to tell my four-year-old
that his mommy might die. That was simply not happening. But I didn’t want to
lie to him either. He was old enough that he should know what’s going on.
Besides, he is very clever and a master eavesdropper. Eventually he was going
to pick up on what the grown-ups were saying.
So I sat him down to have “the cancer talk,” admittedly very
angry at God that I had to have this talk at all. But we all have our roads to
travel, and this was mine. I had found a video online from a children’s
hospital that explained leukemia with all types of candies, and then I found
another video that explained bone marrow (calling it a “blood cell factory”).
My son looked from me to the videos, wide-eyed and nearly silent the entire
time. Clearly he knew this was serious business, because for my son, being
silent at any time is practically miraculous.
Finally I asked him if he had any questions.
“Do I have leukemia?”
He asked. The mere thought of it tore my heart in half.
“No, baby, you don’t have leukemia. It’s very, very rare.
You are not going to get leukemia.”
“Does Daddy have leukemia?”
“No, baby, Daddy doesn’t have it and he’s not going to get
it.”
“Well then why did you get it?”
This was the part I was dreading. I could not explain to my
son why I got leukemia because no one knew. I couldn’t explain to him how he
could avoid it, or how I could avoid getting it again, because no one knew. It
was infuriating. All I could tell him was that it was very rare. But how does a
four-year-old understand “rare”? His mommy and daddy are his whole world. If
Mommy can get it, then half the world can get it too.
But he seemed to accept my attempt at answers for the time
being. We watched the videos again (upon request), and then he only had one
more question:
“Mommy, when do you get your new bow and arrow?”
Well… I did my best. Clearly I couldn’t expect him to grasp
it all. And I should have known that he would somehow turn it all into a weapons
issue.
Come to think of it, I never did get any new weaponry along
with my transplant. Perhaps now it’s time.